ABOUT THE BLOG

Nearly Twelve months ago as a new family of four, What should have been exciting times we were given the most heart breaking news that would change our world forever. 

Our son Kye, was given the diagnosis of Sanfilippo Syndrome. A terminal neurological disorder like Childhood dementia. There is no cure, we have made peace that there may never be in Kye's lifetime. We Just want to share our experiences and raise awareness to this horrible disorder, with the hopes of  one day finding a cure but to also  reach other families and know they are not alone.

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This Blog will be a Journal, from my own perspective as a wife and mother of two navigating our new reality. With adventures and lots of learning to live with a child's degenerative disability.  We will continue to show Kye so much love and would love to bring you along this journey.

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#smileforkye