Bykristenhardman
Surgery no.3 and it won’t be his last.
The 18th of January , the day Kye is having his 3rd operation in his little life and it won’t be his last. It might be too many a routine...
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ABOUT THE BLOG
Nearly Twelve months ago as a new family of four, What should have been exciting times we were given the most heart breaking news that would change our world forever.
Our son Kye, was given the diagnosis of Sanfilippo Syndrome. A terminal neurological disorder like Childhood dementia. There is no cure, we have made peace that there may never be in Kye's lifetime. We Just want to share our experiences and raise awareness to this horrible disorder, with the hopes of one day finding a cure but to also reach other families and know they are not alone.
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This Blog will be a Journal, from my own perspective as a wife and mother of two navigating our new reality. With adventures and lots of learning to live with a child's degenerative disability. We will continue to show Kye so much love and would love to bring you along this journey.
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#smileforkye
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Time is borrowed, Live life to the fullest.
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Bykristenhardman
The month of November.
To most people November is just a normal, typical nearing the end of the year month. With the occasional birthday, starting to organise...
Bykristenhardman
"Surviving not Thriving."
These last few weeks have been a mental drainer. With everything going on in the world it's hard to not think what we are going through...
Bykristenhardman
Grief and Rainbows- He's still here.
Grief. Something I never thought I'd be experiencing the way its happening. Grief to me is about having the loss of someone or something...
Bykristenhardman
"... Ten Fingers and ten toes, isn't all it takes". The beginning.
Where do I begin. The Journey to get to current time is kind of a long story, but I'll try and make it short and sweet. Because boy was...
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